Growing, talking, and some wind(s)!


It’s hard to believe that just a few months ago we were so filled with questions and nervousness. These past few months have certainly altered our ideas about Ellie’s abilities and range of vision.

Thankfully, Ellie’s eye-muscle alignment surgery went wonderfully! Her eyes are nearly healed and she barely displayed any discomfort or pain (she did despise the required eye medication at first but she grew to actually like/display some amusement by its application towards the end [which certainly came as a surprise!]). Some of our questions about her vision have been answered. Nevertheless, we impatiently await a response from Vanderbilt School of Medicine, regarding genetic testing. Hopefully we’ll be asked to make a (couple) day-trip to Nashville where Ellie can finally get tested and I can tour some bourbon distilleries! If that happens, we’ll be sure to keep you posted. Ellie is also developing incredibly rapidly with her motor function, it was just a few months back that Sarah and I were so worried about her (then) abilities.

Personal developments: Sarah gave a wonderful talk to the fraternity sisters (yes, that is right) of Delta Gamma. Sarah was selected by the Center’s vision therapist as a unique and passionate advocate for visually impaired children, in addition to being an exceptional mother and teacher to Ellie. The women of DG are all in their 70’s at least, some of whom are founding members of Delta Gamma Center for Children with Visual Impairments. They support our family by keeping us in touch with a pro-bono visual therapist and physical therapist, both of whom have become like family to us.

Ellie fills our lives with constant joys and surprises. Now that the weather has turned towards spring I have taken to afternoon walks around the neighborhood with Ellie. She sings and speaks her Ellie language all along, mimicking sirens, birds, and the words I encourage her to use; the cuteness is unending!

Ellie has also grown quite fond of wind, be it artificially generated or natural. We’ll upload a couple of the videos we’ve taken recently, they’re quite the hit amongst our family and friends! Our questions seem to be pushed to the margins as we seem to forget about Ellie’s (dis)abilities and focus on her as a beautifully silly and joyful child-I always remind myself to simply enjoy this chance to live childhood all over again. Ellie’s world is my world, as a parent I find myself living through her eyes and her experiences. Everything is curious, everything is “what,” and everything “lllllovv.”



  1. Sutira Piyajessadakul

    I appreciate parents like you both. Unfortunately where I work, we come across parents that shouldn’t be parents way too often. Many of them we had to called child protective service on bc of their idiotic methods they called ‘parenting’.
    Eleanor is lucky girl to have parents like you guys. Her life is full of love, happiness, n endless opportunities regardless of what her dsabilities may be. I hope you both know that your determination
    /dedication are admirable. Lots of Love!!

  2. Linda (Nana)

    I love the way you give us a glimpse into your world. Eleanor is so happy and content, no wonder, her life is surrounded by two amazing parents.

  3. hi, we are a charity in Scotland delivering a range of services for blind and partially sighted people of all ages – including small children! We love your blog and have shared info about it on our blog. We have also tweeted quite a bit about it today. We wanted to share your blog with the parents who are in touch with us. PS – We all think Ellie is lovely! @wearevisibility &

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